macabrett [comrade/them, any]

  • 2 Posts
  • 25 Comments
Joined 3 years ago
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Cake day: August 30th, 2022

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  • The uncertainty is awful. It took me ten years to get diagnosed with anything. I had so many doctors that thought I was just seeking pain pills. I had to beg a primary care physician to refer me to a rheumatologist. The rheumatologist guessed what I had within 5 minutes. A few blood tests, X-rays, and an MRI later and I had a diagnosis. Ten years and then someone guesses it in 5 minutes. Autoimmune diseases are weird like that.

    I’m also incredibly pro-vax, but those things knock me on my ass for days. Seems pretty common for people with autoimmune diseases.








  • I want to share my experience as a disabled person, because I think it’s very easy to simply not notice our non-existance:

    I don’t exist anymore. I’m a hermit. It’s been years since I’ve done anything in public. I go to the rheumatologist, I go to a lab to get blood tests, and once a year I get an x-ray to make sure I don’t have TB. I don’t do anything else. There’s about a two week period where being outside isn’t some unbearably high or low temperature that exacerbates my condition.

    Please care about covid. Just, please. Do it for people like me if that helps you, but mostly do it for yourself. This virus can make you like me and it’s miserable (I was sick before Covid, but Covid is known to trigger autoimmune conditions which are the primary cause of my suffering).